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Information updates

SCID Newborn Screening Update - July 2022

The ASCIA Immunodeficiency Strategy was launched on 29 April 2022. ASCIA has worked in collaboration with patient organisations (IDFA, AusPips, IDFNZ and HAE Australasia), and other stakeholders to develop the Strategy. The first goal of the Strategy is to enable early diagnosis of severe combined immune deficiency (SCID) by newborn screening of the Australian population. 

Following the Strategy launch and long term advocacy by patient organisations and ASCIA members, ASCIA welcomes the formal recommendation for SCID to be included in Australian Newborn Bloodspot Screening Programs which was recently announced in a media statement by the Australian Government https://www.health.gov.au/ministers/the-hon-mark-butler-mp/media/international-neonatal-screening-day

It is a pleasure to announce that New South Wales has commenced routine SCID newborn screening as of 1st August 2022, and the Queensland state government has announced that they will fund routine SCID newborn screening. 

It is anticipated that other Australian states will also make funding commitments for SCID newborn screening.

The incidence of SCID is about 1 in 58,000 births. Most patients with SCID have a genetically identifiable cause, and usually develop severe, recurrent, persistent and opportunistic respiratory and gastrointestinal infections within the first few months of life, with failure to thrive. SCID is fatal in the first two years of life without early and definitive intervention which is enabled by newborn screening.

The ASCIA Immunodeficiency Strategy is available at https://www.nationalimmunodeficiencystrategy.org.au/

To read more about the Strategy launch go to https://www.allergy.org.au/about-ascia/info-updates/ascia-immunodeficiency-strategy-launch

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ASCIA 2022 Conference Update - July 2022

ASCIA 2022 Conference, 30 August - 2 September 2022, Melbourne Convention and Exhibition Centre 

We have received a record number of poster abstacts (101) in addition to 18 clinical grand rounds (CGR) abstracts.  The deadline for abstract submission was 11 July 2022, but registration is still open. 

To register go here

To view the program book go here

The Australian Autoinflammatory Disease Symposium 2022 is being held at the Walter and Eliza Hall Institute (WEHI) in Melbourne on Monday 29 August 2022, prior to the ASCIA 2022 Conference.
To read more and register go here www.allergy.org.au/about-ascia/info-updates/autoinflammatory-disease-symposium 

ASCIA 2022 Annual General Meeting (AGM) is being held at the Melbourne Convention and Exhibition Centre on Friday 2 September, 16.30-17.30 and ASCIA members are invited to attend. To read more go here https://www.allergy.org.au/members/ascia-agm

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Telehealth Update - July 2022

Following cessation of the temporary telehealth arrangements on 30 June 2022, the following permanent telehealth arrangements for medical specialists and consultant physicians in Australia apply from 1 July 2022:

  • A full range of services are catered for through 42 permanent telehealth video and 9 telephone items for specialists and consultant physicians.
  • Telehealth services for initial and subsequent attendances are permanently rebated through the MBS where delivered by videoconference, and minor attendances are permanently rebated when delivered by telephone or videoconference. These ongoing telehealth items took effect on 1 January 2022.
  • In line with this, MBS rebates for specialist services by phone will continue to be available, in the form of less complex or shorter subsequent consultations, and for consultations up to 45 minutes in duration for psychiatry. 
  • The arrangements reflect an accepted clinical position that face to face and video services support better patient care and outcomes, and should be the preferred form of consultation with patients, particularly for initial and complex consultations.
  • The Government has indicated it intends to defer to 1 October 2022, the implementation of the telephone specific 30/20 compliance rule which was to take effect on 1 July 2022.  

Additional information on the permanent telehealth items is available in the new Fact Sheet on the MBSOnline website MBS online - MBS Telehealth Services from 1 July 2022

If you have any questions in relation to this matter please direct these to the Medical Specialist Services Section via email at: This email address is being protected from spambots. You need JavaScript enabled to view it.

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CFAR Hot Publications call for submissions - June 2022

The Centre for Food & Allergy Research (CFAR) Hot Publications session is being held on Wednesday 31 August 2022, 11.30-13.00 AEST, as part of the ASCIA 2022 Conference in Melbourne.  This session features brief oral presentations summarising food allergy research that has recently been published or accepted for publication in peer-reviewed journals. Selection will take into account journal impact factor and novelty of the work.

Submissions are invited for recently or soon-to-be published work for a CFAR Hot Publications presentation by emailing This email address is being protected from spambots. You need JavaScript enabled to view it. by 11 July 2022 with the following information:

Presenter’s name:

Presenter’s primary affiliation:

Presentation title:

Abstract:

Manuscript status* (select one): submitted, under review, accepted, in press, published

Citation information* (as applicable – journal, date submitted/accepted):

Please confirm that you have completed your early bird registration to attend Wednesday 31/8 of the ASCIA 2022 Conference**

*Manuscript status and citation information will be confirmed/updated for selected speakers in late July.

**Applicants should arrange their own day only (Wednesday 31 August) or full conference registration, and CFAR will reimburse Hot Publications speakers for the cost of early bird registration for one day in person ($280-380) or virtual ($220-250) attendance.

Presentations and Q&A will be live on Wednesday 31 August, so speakers must be available to attend the ASCIA 2022 Conference on Wednesday 31 August, either in person or virtually. Speakers who attend virtually will also need to pre-record their presentation.

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World Allergy Week - 5 to 11 June 2022

The theme for World Allergy Week 2022 (5 to 11 June) is respiratory allergic diseases, including asthma. The importance of the connection between allergic airway diseases and asthma is reflected in the ASCIA 2022 Conference program and ASCIA online resources:  

  • The ASCIA 2022 Conference program features a Challenging Asthma Symposium as well as a Pollen Allergy Symposium.  Discounted earlybird registration and abstract submission close on 4 July 2022.
  • ASCIA allergic rhinitis e-training for health professionals has recently been updated to include information about chronic rhinosinusitis with nasal polyps (CRSwNP) and is available at https://etraininghp.ascia.org.au/
  • ASCIA has recently developed a CRSwNP Position Paper which is available at www.allergy.org.au/hp/papers/crswnp
  • The ASCIA website includes respiratory allergy resources www.allergy.org.au/allergic-rhinitis 

World Allergy Week is a global campaign of the World Allergy Organisation (WAO), which aims to raise awareness of the impact of allergic diseases in our communities. 

WAO will host its official World Allergy Week 2022 webinar on Thursday 9 June, beginning at 8:00 am US Eastern Daylight Time. (Click here to search for your corresponding time zone.) Duration: approximately 90 minutes - Click here to register

The connection between asthma and allergic airway diseases is important, and it is known that asthma and allergies in the upper airways frequently co-exist. This can aggravate breathing difficulty, wheezing, cough, and other respiratory problems. Treating asthma and upper airway allergies together helps improve both problems. Integrated diagnostic and therapeutic approaches become even more important with severe and difficult-to-control disease. Fortunately, there are treatment options and patient education tools that can help to address such challenges.

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Autoinflammatory Disease Symposium - June 2022

The 2nd Australian Autoinflammatory Disease Symposium is being hosted by the Walter and Eliza Hall Institute (WEHI) on Monday 29 August 2022, prior to the ASCIA 2022 Conference in Melbourne.

This symposium will facilitate discussion of autoinflammatory diseases, spanning research, clinical management and a session for patients and their support networks.

This hybrid event can be attended in-person or viewed online and a registration fee of $50.00 applies for in-person attendees and includes morning tea, lunch, afternoon tea and post event refreshments. Registration is free for students and virtual attendees.

Registrations close 5pm (AEST) Monday 8 August 2022 for in person and online attendees. 

To register go to https://www.eventbrite.com.au/e/2nd-australian-autoinflammatory-disease-symposium-tickets-342537578117

If you are feeling unwell on the day, please do not attend this event in person, instead view online. WEHI recommends wearing a mask while visiting the institute where social distancing is not possible.

Further details are shown below. 

For event enquiries, please email This email address is being protected from spambots. You need JavaScript enabled to view it.

Program

Science session: The molecular basis of autoinflammation

9:00am -10.30am

  • Kate Schroder (UQ, Science overview, NLRP3 inhibitor update)
  • Najoua Laloui (PeterMac, AID due to cleavage resistant RIPK1)
  • Ivona Aksentijevich (NIH, Ubiquitination and Autoinflammation)
  • Marcia Munoz (Garvan, Prenylation in Mevalonate Kinase Deficiency)

11:00am - 12.30pm

  • Shane Grey (Garvan, Haploinsufficiency of A20)
  • Sophia Davidson (WEHI, Dominant negative Otulin deficiency)
  • Elisabeth Mulazzani (WEHI, Blockade of G-CSF for APLAID)
  • 2 x short talks from abstracts

Clinical session: Treatment and therapy of AID

1.30pm - 3:00pm

  • Ed Giles (Monash, Advances in diagnosis and therapy of EOIBD)
  • Rohit Saldanha (SCH, JAK inhibition for interferonopathies)
  • Samar Ojaimi (Monash) and Thomas Reygaerts (WEHI, CDC42 AID)

3.30pm - 5:00pm

  • Peter McNaughton (QCH, diagnosis of AID)
  • Jonathan Akikusa (RCH, targeting biological therapy for AID)
  • Marco Gattorno (Italy, AID diagnosis and therapy overview)
  • Karen Raymond (Adelaide, Personal take on life with, and research of, AID)

Patient Session: Panel Discussion

5:00pm - 6:00pm

  • Nicole Millis (RareVoices Australia)
  • Marco Gattorno (Italy, Pediatric Rheumatology)
  • Melanie Wong (Westmead, Pediatric Immunology)
  • Jeff Chaitow (SCH, Pediatric Rheumatology)
  • Charlotte Slade (Melb Health, Clinical Immunology)
  • Michael O’Sullivan (FSH, Clinical Immunology)
Abstract Submission

Two talks will be selected from abstracts. Please submit a single page word doc or pdf to be included in the symposium handbook. Include a photo (headshot) of the presenter so that delegates can engage with questions during breaks

Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Submission deadline is 29 July 2022.

Organising committee
  • Seth Masters (WEHI)
  • Mike Rogers (Garvan)
  • Samar Ojami (Monash)
  • Sam Mehr (RCH)
  • Marcia Munoz (Garvan)

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Influenza vaccination and allergy - May 2022

People with egg allergy may be safely vaccinated with the influenza (flu) vaccine

Information about Influenza vaccination and egg allergy is available on the ASCIA website https://www.allergy.org.au/patients/food-allergy/egg-allergy-flu-vaccine 

People with mammalian meat allergy may also be safely vaccinated with the influenza (flu) vaccine.

For people with alpha gal sensitisation or mammalian meat allergy or a history of tick anaphylaxis, VAXIGRIP TETRA and AFLURIA QUAD appear to be the safest options, or FLUAD QUAD for people over 65 years, as they do not appear to contain any mammalian products.. 

FLUCELVAX is made in canine kidney and therefore is likely contra-indicated in people with alpha gal sensitisation or mammalian meat allergy.

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Support for people with primary immunodeficiencies - May 2022

The ASCIA Immunodeficiency Strategy for Australia and New Zealand aims to enhance the important work of organisations that support  people with primary immunodeficiencies and their carers, and enable key issues to be addressed, including early diagnosis and improved access to appropriate treatments.

ASCIA commends the outstanding work in advocacy and patient support provided by the following organisations:

IDFA (Immune Deficiencies Foundation Australia) www.idfa.org.au 

pdfIDFA 2022214.33 KB


IDFNZ (Immune Deficiencies Foundation New Zealand) https://idfnz.org.nz/

pdfIDFNZ Update 2022223.12 KB

pdfIDFNZ printed information order form123.96 KB


AusPIPS (Australian Primary Immunodeficiency Patient Support) www.auspips.org.au 

pdfAusPIPS Update 202279.85 KB


HAE (Hereditary Angioedema) Australasia www.haeaustralasia.org.au 

pdfHAE Australasia 20221.58 MB


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